I am trying to get enough money to move, but alas I have not gotten them help promised yet. I am not sure what I will do, but if I have to go to the Marines for help I will.
Baby Bear hasn't been doing that great. My poor little boy has basically been starving to death. The Dr. figured out that between what he was getting, and what he was throwing up he was only getting about 400 of his 1400 calories. My poor little man. ;0/ This has been a very emotional roller coaster trying to figure out how to best take care of Baby Bear and how to best get him to eat. It is amazing what people say to me when they find out he has a G-Tube. Things like : Well just take his tube out, and he will eventually get hungry enough to eat. lol WOW!!! Really lady?!!! Ughhhh some people's inability to filter what they say just amazes me.
Life has been terribly lonely, but will survive it I think. If not I am going to give it a valiant effort. I
have had to fight with Bear's school about providing him with a school nurse. Well law states they have to, but it is trying to get them to follow it that is challenging.
We now have three nurses that help take care of my Bear 7 days a week. It gives me a break and allows me to get some things done. It has been a blessing for Bear as well as two of his nurses are men and he just loves the time he gets to do boy things that his Mama clearly just doesn't understand. ha ha ha
Every day he does things that just amaze me, and make me realize how truly special and amazing this little boy is.
XoXo- Mama Bear
poor Harley puts up with so much. lol Bear's wouldn't let him leave. He had to stay right in that spot so he could put the track over him. ha ha ha